I have been quite ill for the last 10 years.A neurologist diagnosised me with neuropathy, which is deteriantion of the sticky stuff that is around your nerves.I took infusions of gama (imune) goblin for almost 10 years. It cost was $1,500.00 a month. Last March my husband came home and found me in a coma and got me to the hospital immediately. There was no diagnosis at that time.When I recovered I went to one of my family doctors and he gave me a refural to a differnt neurologist.This doctor took a lot of tests etc. before I saw him for the first time.he just called the hospital and set the tests up for me.
Meantime I went to a SAR (Sons of the American Revolution) dinner meeting with my husband.The topic of discussion was Melungeons.Many of you know about these people.About half way through this program the speaker started talking about genetic diseases that come from mixed race people.This would include Native Americans/white, etc.I do believe I was at this meeting by devine appointment. The speaker covered every symptom I have ever had. I knew what my medical problem was when we left that meeting. I immidiately got on internet and did some indepth research of FMF (Familial Mediterranean Fever).This is a disease that is not common to the United States.It is prominent in the middle east countries and the countries around the Mediterranean Sea.It is a genetic disease that is passed down from one generation to another.You have to have a mutant gene from both of your parents to get this disease.
FMF has many symptoms. Fibromyalgia is one, Angelosis Spondiltis (deterreation of the spine), is another one. Some forms of arthritis and many other things doctors call diseases that are really symptoms of a disease.There is no cure for this. However, there is help. There is a medication available to help the problem.
Here are some ways to know if you might suspect you have this disease.It causes terrible pain.Sometimes even my skin hurts. Deep depression, blisters on the bottom of your feet.You cannot get your thinking pattern straight. Is causes you to not to beable to walk.It mimics many things. It mimics gallbladder problems, arthritis, etc. FMF is an inflamatory disease. That means that every organ in your body is inflamed. Your stomach hearts, you have severe migraine headackes, you might have colon problems.People think you are a hypocondrac because you have so many differnt alments.Doctors think the same way. (Now, I am not a doctor, I am just explaining what I have in hope that someone can be helped from this information) Purple marks on people is an indicationof this.Cycle cell Anemia is another symptom. This is usually found in the Black races. However, more and more cases of this is showing up in the white race. You might be the person in your family that does not look like anyone else. That is me.My father has beautiful blue/black hair and golden skin from his NA ancestory.I am the complete opposite of any of my relatives. I have blonde hair with a reddish cast to it. I am very light skinned, but I have very dark blue eyes. The blue is so dark it looks black.No one else in my family have these eyes.
When I left the hospital that I spoke of I felt like I was in a deep dark well full of pain and I could not claw my way out. I could no longer walk. I could not hold a can of vegies in my hands without dropping it.The depression was so deep and the pain was excruciating.
When I went to the new neurologist for a new diagnosis I already knew what I had.My husband was sitting in a chair in the office with me and he was reading my research.The doctor gave me the diagnosis which was exactly what I had researched.FMF.I asked him to write a perscription out for Colchicine which is a very old drug.Abraham probably fed it to the Kings of Egypt! It is made from the autumn crocus flower that grows in the Mediterranean countries. It is dirt cheap. The doctor would not write me a perscription for this medication.Two days later, he called and told me he had talked to a couple of my other doctors about this and that had just called in a perscription for me.
Yes, I take my notebook of research to every doctor I go to. It does drive some of them nuts, others find a way of helping other people that they could not diagnosis.
My husband has FMF also.
since I started taking the proper medication, the muscle spasms stopped, I could sleep, I can walk now, the depression is completely gone. The pain has subsided.I can think.God definitely was part of this.My family doctor has a copy of my notebook (it is more than 4 inches thick). He has read all of it. He has been able to help other people.I am getting well, one day at a time. This is God's miracle for my life at this time.
The doctor told me that I do have some memory loss and he does not know if I will get it all back or not.Right now it affects numbers and words. I cnnot add or subtract very easily.I forget words. Sometimes I cannot even see how the word is spelled in my mind.this accounts for all my typos that are really not.I am spelling words like I see them.I know I will regain this loss.
I do not want anyone to suffer as I have.If you read this and you can apply some of this to yourself or family members, please contact me and I will send you information on this disease.Remember it is genetic and in my case, it comes from my Native American Heritage.Cherokee Indians are mixed race.If you go back far enough you will find that they can be part Turk (like in the country Turkey) and many other combinations that will take you back to the middle east.It is a weird thing.