The reason for this post is that I have what is known as a genetic disorder. However, we cannot trace any signs of it in the family.It is called Alport's Syndrome/Alport Syndrome. It is a kidney condition which also affects my hearing.
I have been asked to see a group of genetcists, since this is obviously an interesting case for them.
I was hoping for any help on tracing any signs of it, since this could also help with treatment.
It would also really help me in the long term in terms of family planning, as it would help find out how it is likely to be passed on, and the effects of this if I were to have children, which is really important to me.